Since Mae’s successful SDR surgery in 2014 the mission of our fundraising has shifted to ongoing rehabilitation costs. Our aim is to fund Mae’s therapy costs, which maximise function, develop her mobility and will assist her independence as she grows older.
Although we have seen, and shared with you, vast improvement in Mae’s ability to stand and begin to walk as a result of her SDR surgery, the procedure is still not recognised in the UK and, as such, the operation and necessary follow-up is not supported by the NHS. Families throughout the UK, like our own, continue to privately fund the operation, and considerable ongoing therapy costs.
This video helps to explain Mae’s ongoing journey:
We continue to have weekly individual Physiotherapy sessions for Mae, to focus on her exercises to build strength and stamina in her legs and maintain range of movement. These are not funded by the NHS, so this is something we have to fund privately, at around £4000 per annum. Intensive residential therapy has helped Mae progress in her independence but this costs approximately £10,000 per annum.
Mae attends Riding for the Disabled lessons to improve her trunk control and muscle strength. These are personally funded by the family at £500 pa.
Mae has regular swimming sessions, which is an excellent all-round exercise, to consolidate all of the other therapies. This is also personally funded by the family at £500 pa.
We are always happy to answer any of your fund-raising questions regarding Hope4Mae and open to your suggestions as to how you can continue to assist us in supporting Mae’s therapy. Thanks so much for your support!
To offer support by way of a sponsored event, fund-raiser or advertising Mae’s cause, please contact us at [email protected]