Post-op update, day 1

Good morning everyone! As we start our day in the UK, Mae is enjoying her first night of sleep post-op in St Louis. So far she spoke to Mum at midnight (GMT) and asked when she could get in her wheelchair! Then Mum met the ‘touch-dog’, Pepper at 2am (GMT), whilst Mae was sleeping, before everyone retired at 7am (GMT). Here’s a message from Mum at 7am (1am in St Louis):

‘Feeling tired. Today has been an 18 hr day. Time to get some sleep before the doctors do their rounds at 6am. Mae has been sleeping for the last few hours. She has been turned and seems to be coping well.’

So, we’ll know more at about 12 noon GMT, when the Drs do their rounds. Well done Mae and we’ll keep you posted here and on the Hope4mae page. Thanks xx

Mae, sleeping peacefully following her SDR surgery

Mae, sleeping peacefully following her SDR surgery

Mae is in safe hands :-)

Mae is now in surgery with Dr TS Park for the operation that will change her life.
Please keep her in your thoughts and prayers xx

Mae pre-op

12:21pm St Louis (18:21 GMT) From Mae’s Mum: ‘Just got our first call from Angie in theatre to inform that Mae is doing just great. Dr Park is almost ready to make the incision. Feeling really positive. Hopefully we will have another update in around an hr.
Thank you so much for all of these supportive messages. Feeling very loved xxxx’

13:40 St Louis (19:40 GMT) From Mae’s Mum: ‘We’ve just had our second call to say that Mae is tolerating everything and doing great. Dr Park will have finished the procedure in around an hour.’

14:30 St Louis (20:30 GMT) From Mae’s Mum: ‘Our third call: Mae is stable and Dr Park is working on closing her incision.’

14:55 St Louis (20:55 GMT) From Mae’s Mum: ‘Mae’s surgery is now complete and she will soon be in recovery x’

16:50 St Louis (22:50 GMT) From Mae’s Mum: ‘Mae is doing great. We’ve just had a transfer from recovery to Mae’s new room for the next few days’

We’ll update you on news in the morning, UK side. In the meantime we can all go to bed knowing Mae’s doing well! Thanks to everyone who has follwed Mae’s progress through the day. We were overwhelmed to reach over 2000 people at our height of activity on facebook today. Thanks for the support xx

Nearly there!

Well, we can’t believe just how quickly the time has come around and at the end of this week we will be off to St Louis for Mae’s operation! Like the proverbial swans, we may look calm on the surface but we’re paddling like mad under the water!

Whilst packing and preparation is still hapenning, we met with Calendar news today to talk about the journey, and it still feels surreal. It seems like it has been a whirlwind ride to get this far. We are so thankful for all the support along the way, and to those who continue to help us raise much needed after-care funds.

We have had some ups and downs – some great events to get us to this stage and some sad news about some local collection tubs which have been stolen, yet our supporters remain behind us and keep us going through it all.

We will be posting a fund total update very soon but we presently stand at an amazing combined total of £83,936 between the Hope4Mae page and the community fund.

We have been touched this week by the words of Dr TS Park and parents of children who have gone through the SDR operation and you can see the wonderful impact of this amazing surgeon in this YouTube video.

We can’t wait to bring you news of our very own experience and we are excited about the next part of our journey!