Mae is now in surgery with Dr TS Park for the operation that will change her life.
Please keep her in your thoughts and prayers xx
12:21pm St Louis (18:21 GMT) From Mae’s Mum: ‘Just got our first call from Angie in theatre to inform that Mae is doing just great. Dr Park is almost ready to make the incision. Feeling really positive. Hopefully we will have another update in around an hr.
Thank you so much for all of these supportive messages. Feeling very loved xxxx’
13:40 St Louis (19:40 GMT) From Mae’s Mum: ‘We’ve just had our second call to say that Mae is tolerating everything and doing great. Dr Park will have finished the procedure in around an hour.’
14:30 St Louis (20:30 GMT) From Mae’s Mum: ‘Our third call: Mae is stable and Dr Park is working on closing her incision.’
14:55 St Louis (20:55 GMT) From Mae’s Mum: ‘Mae’s surgery is now complete and she will soon be in recovery x’
16:50 St Louis (22:50 GMT) From Mae’s Mum: ‘Mae is doing great. We’ve just had a transfer from recovery to Mae’s new room for the next few days’
We’ll update you on news in the morning, UK side. In the meantime we can all go to bed knowing Mae’s doing well! Thanks to everyone who has follwed Mae’s progress through the day. We were overwhelmed to reach over 2000 people at our height of activity on facebook today. Thanks for the support xx
On the 25th January we landed safely in the city of hopes and dreams – the place where Mae’s dream of walking could become a reality, thanks to SDR, Dr Park and all those who have supported our fund raising efforts!
Monday was our first visit to St Louis Children’s hospital where we got to meet with Dr Park and his team. We are feeling positive, although Mae was worried that Dr Park might wish to X- ray her. She was great throughout her pre-op evaluation, and we’re all set to go ahead. Thanks to the wonders of technology we hope to get ‘face time’ with the boys around lunch time and this will give Mae an extra boost.
Meeting Dr Park
Mae’s smile seems to be just as infectious here as it is back home, despite feeling jet-lagged and trying to adjust to the time zone difference. Mae had great fun splashing around in the pool on Monday, which made her wiped out earlier than usual. She managed a good night’s sleep whilst Mum tossed and turned – afraid of missing the alarm which would signal preparation for Mae’s op! Mae’s first words on waking were ‘Mum, is Dr Park going to make my legs better today?’
Mae’s op will be on Tuesday at 11am St. Louis time – about 5pm GMT, so about the time you read this post! I can’t believe this day is finally here, and I’m feeling a mixture of emotions.
The local press back home have continued to feature Mae’s story, and help us to publicise the aftercare costs which will be involoved. Thank you to everyone who has helped us get this far!
Doncaster Free Press, p.32, Thurs Jan 23rd 2014
Thank you so much to each and everyone of you that have helped to make this possible for Mae. We truly can’t thank you enough. This operation really does hold the potential to be life changing for Mae. xxx
Well, we can’t believe just how quickly the time has come around and at the end of this week we will be off to St Louis for Mae’s operation! Like the proverbial swans, we may look calm on the surface but we’re paddling like mad under the water!
Whilst packing and preparation is still hapenning, we met with Calendar news today to talk about the journey, and it still feels surreal. It seems like it has been a whirlwind ride to get this far. We are so thankful for all the support along the way, and to those who continue to help us raise much needed after-care funds.
We have had some ups and downs – some great events to get us to this stage and some sad news about some local collection tubs which have been stolen, yet our supporters remain behind us and keep us going through it all.
We will be posting a fund total update very soon but we presently stand at an amazing combined total of £83,936 between the Hope4Mae page and the community fund.
We have been touched this week by the words of Dr TS Park and parents of children who have gone through the SDR operation and you can see the wonderful impact of this amazing surgeon in this YouTube video.
We can’t wait to bring you news of our very own experience and we are excited about the next part of our journey!