Behind the scenes…….

We are sometimes asked when the website will next be updated. It’s great that people want to follow Mae’s story, so we thought we’d share a bit of behind-the-scenes life, so you know why we sometimes go a bit quiet!

This website is a digest of what has been achieved and a place to find all of our events and links. We tend to post major news on here, and group a number of news items at once. You will find our regular daily updates on our facebook page, where myself (Sarah – admin) and Mae’s Mum, Amy, post news as it happens.

In a typical week we upload 15 to 20 posts and photos to facebook, and respond to emails, phone calls and messages. Sarah deals with around 20 spam comments on the website every week – from where to buy cheap cigarettes to people sharing sites of a ‘less tasteful’ nature! We oversee and advertise the easy fundraising site, where supporters can help us raise money through their normal online purchases. We distribute and collect charity tubs across Doncaster, and Mae and her Mum attend every possible charitable event which is run in Mae’s name. This is in addition to normal routines, which are anything but ‘normal’!

Mae’s current ‘normal’ routine involves a school attendance of 49 hours per week, as every child has. On top of this Mae has 7 to 8 hours of Physiotherapy activity per week, including 3 swimming sessions, horse-riding, Physiotherapy at school and Private home-based Physiotherapy. Mae has two brothers, so their routine also has to be accommodated, so it’s a flurry of Beavers, Cubs, swimming, homework and ALL the standard meals, laundry, cleaning, family visits and friends’ parties that most families will be familair with!

In addition to that little lot, the fund-raising hasn’t ended! We were amazed to have achieved Mae’s target to get her to the US for her operation in January 2014, and the generosity of locals and supporters farther afield was astounding. We always knew that there would be  more to do after Mae’s operation, as her success in achieving her dreams of walking depend on assistive equipment and consistent physiotherapy, to develop her strength and muscle bulk in her legs and trunk. This equipment will be renewed as Mae grows and Physiotherapy will be ongoing as Mae develops. This all costs money, and lots of it!! Mae has two further intensive sessions booked at Footsteps which, in addition to the cost of treatment, incurs 30 journeys of 156 miles in travel costs. We have far to go with the fund-raising….

So we are thankful for continued support from those who understand it’s not over. We have many helpful people who continue to house a charity tub for Mae and every penny really does count. We have local companies who get in touch, often out of the blue, and ask if they can arrange a dress-down day, or a bake sale, or run an event in Mae’s name. We are so grateful for all the help and offers of support.

It’s an ongoing process, and we appreciate that everyone wants to be a part of it. So we continue to try our best to bring you our news. If we go quiet for a bit, rest assured we are creating the next lot of news to share with you! :-) Thanks for following our progress x

Coming up….

This weekend there is a flurry of activity with supporters and events in aid of Hope4Mae. It’s also Mae’s birthday, so we will be busy with celebrations too!

Friday 9th May, 10am to 3pm & Saturday 10th May, 10am to 12 noon local Doncaster business sarahcards.co.uk will be holding an Open House with her new Summer Phoenix cards, with donations from sales to Mae’s after-care. All welcome – please contact Sarah on 07587 245 658 for directions, or to request your free brochure if you can’t go. You can also order online and support Hope4Mae – quote ‘MAE’ at checkout at www.sarahcards.co.uk

summer banner

10th May 2014 Kerry Doherty, Enya Samways, Barry Stewart, Nicola Brookes, Jay Samways and James Bowman are taking part in Rat Race Dirty Weekend. There will be a staggering array of monstrous obstacles to challenge the hardest contender! These aMAEzing, crazy people would really appreciate your support. Every penny raised will go towards Mae’s post-op therapy. Support them on their JustGiving page.

kerry Doherty challenge

11th May 2014 3pm kick off at Doncaster Rovers: Charity Football match, supported by haart Estate Agents, in memory of Jamie Rowe. All proceeds to Mae’s post-op therapy. You may have seen local haart boards advertising this event, and confusing lots of people into thinking that their friends are moving home! Huge thanks for nominating Mae’s charity for this event, and to all who have hosted a haart advertising board for us.

haart

We will be heading back from FootSteps tomorrow at the end of mae’s first run of intensive rehab. We’ll give you a summary of our visit next week. Thanks for following Mae’s progress!

Mae visits Footsteps as part of her post-op therapy

It’s been another busy month in Mae’s rehab, and she has spent her first week at a specialist post-op centre, called Footsteps, in Oxfordshire. The Footsteps programme is a three week intensive course, costing almost £2,500, and would never have been possible without the generous help and donations from our supporters, so thank you to everyone!

We are unable to take photgraphs of Mae’s visit, but you can see some of the specialist equiment on the Footsteps website. The equipment is pioneering, and some is exclusive to this centre in the UK, and all assists in developing the muscle tone and strength of children with disability. We continue to raise funds to help Mae make the most of available aftercare, and you can see our May events now on the website.

As you can appreciate, it has been important for us to establish some family time once more, following the lengthy fund-raising efforts of 2013, and the trip to USA for Mae’s surgery early this year. We have fewer events running at present, but we continue to receive support from local companies and sponsors, and some individual donations. We would like to thank all who make it possible for us to continue on Mae’s journey to independence. It has been a joy to see Mae striving to stand tall and this photo of her last week, at our visit to Stone Henge, makes it all worthwhile! Thank you xx

standing stones!

standing stones!