29th January 2014
After a long day yesterday, Mae woke at 5am (11am GMT) in a panic, wanting to know where her wheelchair was and why she had to have a drip in her arm. Understandably these are hard questions for her family to explain the answers to, and it has been difficult to hear that Mae has been unsettled. Mum says: ‘All of the answers are days away and so it seems quite hard to find the right thing to say. I’ve been trying to reassure Mae that it shouldn’t be too long as I don’t want to cause her any further upset. The more upset she gets, she cries and then says “Mum, my back hurts” For a split second I wished I could give her the world back that she feels comforted in and is so used to….’
After a few more hours sleep (10:45 St Louis, 16:45 GMT) Mum updates us: ‘Mae had a catheter leak and so we have had a few more tears with a bed sheet change and rolling her. Mae asked for some Weetabix, which is great progress, and the first thing she has eaten since her pre op fasting. Good job we bought some with us as they don’t have it here in the US. The nurses have been fascinated by it. Mae managed two Weetabix which I am really happy about. Last night there were concerns about Mae’s fluid levels. In recovery she had a drip and then she was having small sips of apple juice. Through the night her catheter levels were low. Thankfully they are now on the up. Mae is now sleeping peacefully and the nurses are happy with her progress!’
When Mae wakes she will be greeted with this huge bunch of balloons for her bravery, sent by her Auntie and Uncle!