Behind the scenes…….

We are sometimes asked when the website will next be updated. It’s great that people want to follow Mae’s story, so we thought we’d share a bit of behind-the-scenes life, so you know why we sometimes go a bit quiet!

This website is a digest of what has been achieved and a place to find all of our events and links. We tend to post major news on here, and group a number of news items at once. You will find our regular daily updates on our facebook page, where myself (Sarah – admin) and Mae’s Mum, Amy, post news as it happens.

In a typical week we upload 15 to 20 posts and photos to facebook, and respond to emails, phone calls and messages. Sarah deals with around 20 spam comments on the website every week – from where to buy cheap cigarettes to people sharing sites of a ‘less tasteful’ nature! We oversee and advertise the easy fundraising site, where supporters can help us raise money through their normal online purchases. We distribute and collect charity tubs across Doncaster, and Mae and her Mum attend every possible charitable event which is run in Mae’s name. This is in addition to normal routines, which are anything but ‘normal’!

Mae’s current ‘normal’ routine involves a school attendance of 49 hours per week, as every child has. On top of this Mae has 7 to 8 hours of Physiotherapy activity per week, including 3 swimming sessions, horse-riding, Physiotherapy at school and Private home-based Physiotherapy. Mae has two brothers, so their routine also has to be accommodated, so it’s a flurry of Beavers, Cubs, swimming, homework and ALL the standard meals, laundry, cleaning, family visits and friends’ parties that most families will be familair with!

In addition to that little lot, the fund-raising hasn’t ended! We were amazed to have achieved Mae’s target to get her to the US for her operation in January 2014, and the generosity of locals and supporters farther afield was astounding. We always knew that there would beĀ  more to do after Mae’s operation, as her success in achieving her dreams of walking depend on assistive equipment and consistent physiotherapy, to develop her strength and muscle bulk in her legs and trunk. This equipment will be renewed as Mae grows and Physiotherapy will be ongoing as Mae develops. This all costs money, and lots of it!! Mae has two further intensive sessions booked at Footsteps which, in addition to the cost of treatment, incurs 30 journeys of 156 miles in travel costs. We have far to go with the fund-raising….

So we are thankful for continued support from those who understand it’s not over. We have many helpful people who continue to house a charity tub for Mae and every penny really does count. We have local companies who get in touch, often out of the blue, and ask if they can arrange a dress-down day, or a bake sale, or run an event in Mae’s name. We are so grateful for all the help and offers of support.

It’s an ongoing process, and we appreciate that everyone wants to be a part of it. So we continue to try our best to bring you our news. If we go quiet for a bit, rest assured we are creating the next lot of news to share with you! :-) Thanks for following our progress x

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