CELEBRATE Mae’s 3rd SDR Anniversary with us!

This Saturday, 28th January 2017, marks the third anniversary of Mae’s SDR surgery – where has the time gone?!

We always celebrate Mae’s surgery day as a marker of the huge milestone it was in offering her a door to independence. We have seen her show true grit since her surgery, and a consistent detrmination to develop strength and walking skills. We are now resuming our fundraising to support Mae’s intensive therapy courses, required to keep her mobile and build her strength.

MP fitness 6

At present we are seeing the true value of consistency with Mae’s therapy. Unfortunately Mae broke her arm before Christmas and, due to the weight of her pot and not being able to weight-bear on it, she has been unable to use her walker, or attend her therapy. She has just returned to school today, after 7 weeks away, and we will be resuming her therapy sessions to get her up and about. She has been quite frustrated to be immobile, and have to rely on using her wheelchair each day, and is looking forward to her normal routine.

2017 Jan fracture

We are holding our hand-made king-size quilt grand draw on Saturday at 5pm, in Cantley, and coupling this with an Open House (from 10am to 5pm) where Phoenix Trading greeting cards and stationery can also be bought in aid of Hope4Mae. All are welcome – please contact Amy on 07572 878 679 or Sarah on 07587 245 658 for details of the event or to buy raffle tickets.

quilt 3

We hope you can join us celebrate Mae’s progress!

Our Mission Statement

Since Mae’s successful SDR surgery in 2014 the mission of our fundraising has shifted to ongoing rehabilitation costs. Our aim is to fund Mae’s therapy costs, which maximise function, develop her mobility and will assist her independence as she grows older.

Although we have seen, and shared with you, vast improvement in Mae’s ability to stand and begin to walk as a result of her SDR surgery, the procedure is still not recognised in the UK and, as such, the operation and necessary follow-up is not supported by the NHS. Families throughout the UK, like our own, continue to privately fund the operation, and considerable ongoing therapy costs.

This video helps to explain Mae’s ongoing journey:

The importance of post-SDR Therapy, from MP Fitness

We continue to have weekly individual Physiotherapy sessions for Mae, to focus on her exercises to build strength and stamina in her legs and maintain range of movement. These are not funded by the NHS, so this is something we have to fund privately, at around £4000 per annum. Intensive residential therapy has helped Mae progress in her independence but this costs approximately £10,000 per annum.

Mae attends Riding for the Disabled lessons to improve her trunk control and muscle strength. These are personally funded by the family at £500 pa.

Mae has regular swimming sessions, which is an excellent all-round exercise, to consolidate all of the other therapies. This is also personally funded by the family at £500 pa.

We are always happy to answer any of your fund-raising questions regarding Hope4Mae and open to your suggestions as to how you can continue to assist us in supporting Mae’s therapy. Thanks so much for your support!

Mae walks with Dr Park - with a little help from 'Betsy'!

Mae walks with Dr Park – with a little help from ‘Betsy’!

To offer support by way of a sponsored event, fund-raiser or advertising Mae’s cause, please contact us at hope4mae@hotmail.co.uk

What a week!

We’re excited to share a fantatsic week of excitement for Mae and her family, who are now all officially Foxes! Matt and Amy tied the knot last Saturday, with family and friends very emotional to witness the sight of Mae walking down the aisle in her bridesmaid dress!

'Daddy, wit til you see Mummy!'

‘Daddy, wait until you see Mummy!’

We all enjoyed a fantastic celebration after the ceremony, with special guests The Seventy performing live music all evening. The Seventy were responsible for recording a charity single in aid of Hope4Mae last year, and it was wonderful to see Mae dance to their live rendition at the reception.

See the video! Hope 4 Mae – Ho Hey

seventy wedding

Sadly The Seventy are no longer going to be performing live, due to their other commitments, but you can catch them for one final gig at Halloweekend, Real Time Live, in Chesterfield on 31st October. Advance tickets are just £5 here.

On top of all that excitment Mae was nominated for The Doncaster Free Press Pride Awards …..AND WON an Inspirational Young Person Award!! We’re all so very proud of Mae’s achievements and thank you all for sharing the journey.

Mae's Inspirational Young Person Award

Mae’s Inspirational Young Person Award

As always, huge thanks for eveyone’s continued support and a reminder that we are still raising funds to maintain Mae’s rehabilitation and therapy, currently costing over £20,000 per year to maximise her movement and independence.